ANGRY: Some NDIS users have spoken out about their frustration at the system and the difficulty they have experienced in getting their concerns addressed.
IAN Kirkwood’s article (‘NDIS in trouble, say care groups’, Herald,10/12) also reflects my experience as a parent of a child now in the NDIS system. Our son was diagnosed with a condition called Ehlers-Danlos Syndrome in June this year, a connective tissue disorder that presents itself in a fairly hidden manner but is nonetheless eased and controlled with ongoing physical therapy.
Our experience with the NDIS has been both infuriating and upsetting. After trying to secure an appointment with either a public or private pediatrician in Newcastle for a number of years, we finally had a thorough assessment, resulting in the diagnosis. We had a speech, OT and physio assessment completed (at our expense) and all was ratified by the GP. Paperwork was submitted, then nothing. Not even receipt of the application.
We were lucky to have the support of the federal MP for Newcastle to pursue it on our behalf and within a very short space of time our son was confirmed as a legitimate participant in the NDIS in early October. Then everything stopped.
Numerous visits to the Charlestown NDIS office were met with “you need to follow the process” and “it will take time”. Fast forward to this past Thursday. Frustrated, I phoned the national hotline to wait on hold for around 30 minutes, then only to be transferred to the Charlestown office. I thank the team member that took my call as she listened, consulted with colleagues andadvised that there are special arrangements for participant children six and under. The frustrating thing is that, according to the responder, there’s been yet another change of process. Children six and under are being assessed by partner providers, all not-for-profit, but not all children are being allocated specific providers. That’s great, in my view. We can research and discuss the partners on the approved schedule and decide our preference. But why couldn’t this be instigated at the national roll-out phase on July 1?
We have our team of allied health professionals already working with our child, and he’s making great progress. We qualify for financial support for his therapy but at every stage of this process we’ve hit roadblocks.
We are very lucky we can cover medical expenses above what our private health insurance will, but only in the short term. It upsets me that I still have to advocate so hard for our child beyond confirmation that he’s a NDIS participant. Providers are clearly not pleased with the new scheme. I understand completely.
Blythe Scully,Lambton HeightsTake complaints to trackHOW lucky are we to live in what I believe to be the best and most vibrant city in the world, with tremendous opportunities for an exciting future for our children to prosper?
It is disappointing to read on a daily basis the whinging and the negativity of some readers. If these groups get together at next year’s Supercars race they could all air their grievances. The Grid would be for all Supercars protesters.
Pit Lane would be reserved for Save Our Rail. The main straight could accommodate the ‘We don’t like the light rail” protests. First Turn for Save the Figs. The chicane could accommodate a corporate box funded by council for the Lord Mayor who voted against the Memorial Walk.
Nobbys beach for all the coal export protesters with their kayaks strapped on their backs. And the checked flag would have to go the bloke who was not personally consulted about the mansion built on City Road.
John Lehman, MerewetherRenting may not be optionA HEADS up to Premier Mike Baird (‘New circuit aims to please’, Herald,13/12) when he says that East End opponents of the Newcastle 500 “can rent their places out for a fortune”. Short-term rentals in strata properties are often restricted by the Owners’ Corporation under the individual building’s by-laws.
Tenants are usually subject to a residential lease of no less than three months. In addition, short-term rentals could also be violating council zoning. A recent NSW Land and Environment Court decision found that a property used for short-term lettings is not a dwelling house and hence not consistent with the property’s zoning, effectively preventing it being used for short-term lettings (“Understanding Strata”, Strata Community Australia, 2016).
Think again, Mr Baird, and check your facts before you try to placate/silence those who speak up or question your decisions.
Maree Raftos, NewcastleHappy snaps with KnightON Sunday, I was fortunate enough to attend the McDonald Jones display village at Huntlee, where some of the Newcastle Knights attended so fans could meet them.
As I am an octogenarian and it was very hot, the St John’s Ambulance people took me under their wing, so I say many thanks to them, and for the cold water.
Then a delightful young man, Chanel Mata’utia, came over to chat to me and have his photo taken with me, as I thought I would miss out on the photos and that was my main reason for attending. Chanel was very caring and very polite and a lad of whomhis mother could be very proud.
Chanel, you made an old lady very happy. The Knights I had wanted photos of were not present, namely Jake Mamo and Korbin Sims, but Chanel more than made up for this disappointment. I suggest if the Knights want fans to invest in shares in their club they have more of these photo opportunities and chats to fans.
Elizabeth Giles,AshtonfieldSharing in the dreamYEARS ago I supported the Knights by attending as many home games as I could. The excitement factor alone was worth the entry fee when the likes of ‘The Chief’ and ‘The Johns Boys’ stamped their indelible names on the hallowed turf of the International Sports Centre.
But in this day and age of commercialism when money talks loudest, the magic of a Knights home game seems to have gone into hibernation.
Yet for a small sum of around $3 a week, 40,000 locals could resuscitate a once proud and mighty club.With our proven and esteemed local administrators such as Rob Tew and co calling the shots it would not take long for the club to start pulling in crowds of 20,000 or more to every home game. I wait in great anticipation for the day I can purchase my $500 share for a Knight.
Phill Howlette, Holmesville